Who Are We?

Hello everyone! We're Jonathan & MariClaire Eastabrooks and our oldest, Harrison, was born with an ultra-rare genetic condition called Allan-Herndon-Dudley syndrome. This diagnosis has no known cure and there are less than 350 children in the world who have it. It is described as an X-linked intellectual disability syndrome with neuromuscular involvement characterized by severe hypotonia, and severe cognitive deficiency. In 2020, he suffered a serious situation and nearly lost his life to an undiagnosed C1/C2 stenosis that led to spinal shock and respiratory failure. He is now trach-vent dependent and tube-fed. This blog was set up to keep family, friends, and caregivers updated on what Harrison is up to and where our journey takes us. We live in Tacoma, WA USA. 

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To learn more about his syndrome, please visit the official MCT-8/AHDS Foundation at https://mct8.info/ 

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